Monday, December 17, 2007

Life On A Daily Basis with Susan!~

 

I quit my job today.  Can anyone say Woo Hoo!

My daughter has put in an application for a high school of the fine arts.  It means she will be gone during the week and home only on weekends next year.  ::sigh::  I feel it is a good opportunity for her, as she is very gifted, but man will I miss her.  It depresses me to even think about it.

My symptoms seem to be getting worse.  I live in chronic pain each and every day.  I have some new symptoms to add to the list now.

 
I deal with these numerous symptoms on a daily basis.  I would wish it on no one.  It is all I can do to get out of bed, but I do make an effort to carry on.  I refuse to just shrivel up and die.
 
 
 
My symptoms include, but are not limited to:
 
Extreme fatique
Stiffness in my joints
muscle cramps, especially in my legs and feet
chronic pain in most of my joints, including the first joints of some of my fingers
I have trouble getting up from a sitting or lying position.
Mood swings
Depression
Anxiety
My legs jump, especially at night, but sometimes while I am typing I have problems with this also if I have been sitting for long periods
I have cognitive issues.  It feels like my brain is in a fog.  I don't know how else to explain it.  I have trouble concentrating, memory loss, and I can be talking and have trouble conveying what I am trying to say.  It is like my brain knows, but getting it from my brain to my mouth doesn't always work like I want it to.
I have problems sleeping and am excessively sleepy during the day, but even when I do sleep well at night, I am still excessively sleepy during the day.
The computer screen seems too bright sometimes and the brightness of the sunlight especially bothers me.
Vertigo
Nausea
Stress
 
I have been diagnosed so far with ADD, hypothyroidism, IBS, vitamin D deficiency, high cholesterol, bilateral plantar fasciitis with heelspurs, and am told I am transitioning into menopause.
 
I have loose ligaments in my left shoulder.  When I lie down at night, it causes my shoulder to become partially dislocated which causes excruciating pain making it very difficult to sleep.  I have to sleep with apillow under my arm.  I went through this with my right shoulder several years ago and had surgery and PT for it.
 
 
I cannot help but feel my doctors have missed something.  I am hoping the rheumatologist I have an appointment with can help me.  I am at my ropes end.  It is quite depressing to feel so bad on a daily basis to the point I don't even want to get out of bed, but I force myself to because I have a job and a family to take care of.  I promise you it is all I can do to do any of it, but I make myself do what I can.  I did not ask for any of this.  It is not fun to live like this, but my family needs me even if no one else does so I must try to carry on for them.  I do believe there is a doctor out there somewhere who can help me.  I am not going to give up.  I am going to keep on trying to find one who can help me.  I am a fighter, not a quitter, an optimist, not a pessimist.
 
 
I refuse to keep working in an environment where I am constantly threatened with write ups for something I cannot help.  God knows I hate being sick.  It has gotten to the point sometimes when I feel the worst, I have prayed He would just take me on.  I hurt just that bad and not occasionally, EVERY single day.  I covet prayers.
 
 
If anyone else has simliar symptoms and has a firm diagnosis, please comment me on what it could be.  Thanks!~
 
 
Merry Christmas!~
 
 

14 comments:

Anonymous said...

NO FREAKING WAY!  You quit?!  ::Amy high fives you::  Rock ON, sister!!

Now, the pain.....let's hope my comment isn't too long for the comment box....
the eye sensitivity is probably never gonna go away.  You said you've had migraines, right?  That may be a cause for the sensitivity...
I can relate to the extreme tiredness, but I really think that's related to the antidepressants.  I have the same thing....I'm ready for a nap in the middle of the day even after a good nights' sleep...
I wonder, really, if you wouldn't benefit from something like Vicodin and Flexeril....a pain kiler and muscle relaxant.  I'm taking both every day and it DOES help me immensely.  Doctors are kinda shy about giving out Vicodin, but wth...you ARE in pain....and honestly, I think if you weren't in as much as you're in....the depression wouldn't be as much of an issue....chronic pain wears a person down....

Hey...have you seen a neurologist?!

(Hey....I bet I know what would help you!  If you moved to San Antonio!  hee hee...)

love you muchly!!

~Amy

Anonymous said...

Congratulations !?!?!?!?! on your recent employment status change...I guess.  Sounds like it was time to do it, so I'm sure that this will be a good thing for you.  I hope your daughter gets into the school, that would be great!  I hope that with the stress of your job gone, maybe some of the problems you have been having will subside, and you will start feeling better.

Greg

Anonymous said...

I have a good majority of thoe symptoms but seems like the meds you take bring on more so do what I can at home to ease them. but IM glad your ahome body now

Anonymous said...

I can sympathize Susan.  I have had a rough year too with plantar faciitis and knee pain.  I have bursitis in my hips.  Now I have carpal tunnel in my hands and tendonitis in my elbow, I go to the Dr. today about that.  Have they explored figromyalgia with you?  I'm sorry you had to quit your job.  I have gotten written up to for leaving early to go to Drs. appts.  Hang in there...  Linda

Anonymous said...

Well, my MIL had all those -nausea and was diagnosed with MS years and years ago.  It's now in remission... however, she had a morphine pump implanted in her shoulder and most of those things have gone away now.  It even hurt  her when the wind would blow on her arms.  She had number 10 chronic pain for years too and I felt terrible for her...now with the pump she is living with a number 2  pain level  (this was on a 1-10 level of pain) I'm sorry you have to deal with all that...I got to see first hand what that can do to a person.  And she was a strong person...rarely let anyone SEE the pain but sometimes when she didn't know I was there she would cry because it hurt so bad.  My prayers are with you and hope you get the diagnosis soon so this can be treated!  

Anonymous said...

I just do not know what it could be. I have some of those things caused by arthritis and the tiredness and depression caused by my diabetes.  Anxiety etc. made worse by my cancer drugs.  I only hope and pray that you get to feel better, I shall certainly pray that you do.

http://journals.aol.co.uk/jeanno43/JeannettesJottings/

Anonymous said...

Susan
I knew you had medical issues, but had no idea of the scope of the problems.  My heart goes out to you! I'm glad you quit a job that was adding to your stress.  I'll include you in my prayers and hope that this new doctor can sort some of this out for you.  
Sam

Anonymous said...

I am so glad you quit that job!!!  I have missed you so much since you started working there.  Seems like they just took everything from you.  My prayers are with you that a better one will come along.  And that the health issues will settle down and go away.  I feel a few of these same issues getting older too.  I am determined to get healthier this year.  Hugs,
Lisa

Anonymous said...

Susan I do hope your health issues get resolved ~ good for you giving up that job ~ hope something else comes along that suits you better ~ Ally x

Anonymous said...

ny prayers are for you constantly....and hopefull the doctor will be able to fix a regimen of meds to help you out....God Bless...hugs from KY...Ora

Anonymous said...

I'm keeping you in my prayers on the smoke! Hopefully the doctors can find something that will help you. (Hugs) Indigo

Anonymous said...

Are you sure it wasn't the dog medicine you took by accident.... just teasing and giving you a smile....
of course always special thoughts for you and your family...
will you be ok without your job, how's the moving going, will you be settled by christmas....
Gentle Hugs!!
Linda :)

Anonymous said...

Sounds like Chronic Fatigue Syndrome, also Ressless leg syndrome. I have these and it sounds the same.

http://journals.aol.com/blazensun/ishallovercome/

Sunny

Anonymous said...

I would get a second opinion and ask for testing if it continues. Vitamins can help.  My mouth dropped as you were listing these.  I thought you were talking about ME!  I have a lot of that going on too.  No problem with the eyes...but I have the plantar faciatis and have to be careful about wearing flats or going bearfooted.  Must have an arch support.  I have been low on iron and they ran a test to verify this.  When I take my iron pills I feel 100% better.  I've added a multivitamin as well and feel good when I get my fruits and veggies in along with plenty of sleep.  The pain is familiar sounding and so is the shoulder and the leg situations.  Hard to get comfy and I too have solved much of the problem with pillows everywhere.  My back has started hurting too.  Again the iron pill and vitamins seem to aid as well as drinking plenty of WATER!!!  Sometimes our bodies do not act right b/c they do not have enough water they need.  Try some of these things and see if it eases, and cut out sugars and starches and eat a banana.  That's Dr. Sonya for ya.
LOL  Big hugs.  
Sonya